Case Study 1: Emigrating when participating in a clinical trial
Based on the challenges presented, the primary issues can be summarised as follows:
On-Site Infusion: Finding a hotel that would allow the infusion procedure to take place on-site was a unique requirement.
Flexible Check-In/Check-Out: Securing early check-in and/or late check-out to accommodate the lengthy infusion process was crucial.
Proximity to Border: Identifying a hotel near the border was essential for easy travel by car.
This clearly outlines the logistical hurdles involved in ensuring the patient could continue their clinical trial infusions after relocating.
A patient had been participating in a clinical trial for several years, with visits to the main site every six months and fortnightly home infusions. After emigrating to a neighbouring country where home infusions weren't available, Rare Disease Research Partners (RDRP) were tasked with finding a suitable location near the border of both countries to continue the patient's fortnightly infusions.
Background
Understanding the Core Challenges
We provided extensive support to the family, addressing each of their challenges:
Suitable Accommodation: Successfully securing a hotel near the border that met the patient's specific needs, including on-site infusions and flexible check-in/check-out times.
Negotiated Terms: The ability to negotiate favorable terms with the hotel demonstrates effective communication and problem-solving skills.
Enhanced Comfort: Arranging early check-in, late check-out, and a complimentary breakfast provided additional comfort and convenience for the patient.
Key Achievements
By securing suitable accommodations and negotiating favourable terms, the team was able to ensure that the patient could continue their clinical trial infusions without interruption.
Overall Effectiveness
ABOUT OUR CLINICAL TRIAL SUPPORT SERVICE
Our dedicated team of coordinators use their extensive knowledge of rare diseases and experience to support patients and their families when attending worldwide clinical trials. We do this by offering personalised logistics support throughout the clinical trial journey. We listen, understand, find solutions, and treat every patient as an individual
