Rare Disease Research Partners support research and access to treatment for people living with rare conditions​
Serving rare disease communities
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Our core services

Clinical Trial Support Services

We provide patients with access to worldwide clinical trials by offering personalised logistic support to patients and their families throughout their clinical trial journey.

Managed Access Programmes

We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders.

Evidence

We curate evidence to fully understand the benefits of treatments in populations and support market access for effective medicines.

Research

We undertake novel research into the impact of rare conditions on patients and their families.

Medical Communications

We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications.

Advice

We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases.

Media

Advice

We offer specialist expert advice of all aspects of rare diseases. So, whether you need plain-language communication, patient reported outcomes, constructive discussions with NICE, or anything in-between, we can help.

Meet our team

Tom Kenny

Chief Executive Officer

Bob Stevens

Group CEO

John Illankovan

Head of Group Finance

Toni Ellerton

Executive Assistant

Alex Morrison

Head of Research and Medical Communications

Bennie Marshall-Andrew

Head of Clinical Trial Support Team

Eva Raebel

Principal Research and Medical Communications Associate

Sam Wiseman

Senior Research Associate and Managed Access Lead

Ella Lineham

Medical Communications Associate

Pauline Grant

Clinical Trials Support Team Coordinator

Lianne Mott

Clinical Trials Support Team Coordinator

Jo Slade

Clinical Trials Support Team Coordinator

Harriet Clayton

Clinical Trials Support Team Coordinator

Madeline Pearson Dawson

Research Associate

Neera Gupta

Senior Finance Officer

Marnie Ross

Research Associate

Sandali Jayasinghe

Research Associate

Clara Morrison

Project Support Associate

Collaborations

Testimonials

"You have no idea how much we appreciate all that you are doing for us. Your efficiency and sensitive approach to our requests, has taken such a burden off our shoulders and allowed us to give our full attention to supporting our son."
Father of a clinical trial participant
Father of a clinical trial participantUK
"I would like to thank you for your professionalism and helping me every step of the way, which has made the study visits much more pleasant. You truly deserve my thanks for being so available and responsive. I’ve always been able to rely on you. "
Clincial Trial Participant
Clincial Trial ParticipantFrance
"It really is admirable, the detail and care with which you prepare all the logistics and all the necessary information. As always, you make our trip so much easier. Thank you very much for your excellent work and dedication."
Father of a clinical trial participant
Father of a clinical trial participantSpain
"We so appreciate all you do to make this study possible! Without you to get the subjects here, this wouldn’t happen! You are the best!"
Clinical trial coordinator
Clinical trial coordinatorUSA
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Working together

We are always happy to talk through your future projects and how we may be able to help. Please contact us for an informal discussion

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Contact us
t. +44 (0) 345 260 1087
e. info@rd-rp.com

MPS House
Repton Place, White Lion Road
Amersham, Buckinghamshire, HP7 9LP

MPS Commercial is a Private Limited Company Registered No 08621283. MPS Commercial trades as Rare Disease Research Partners and is a wholly owned, not for profit subsidiary of the Society for Mucopolysaccharide Diseases (the MPS Society), Registered Charity in England and Wales No 1143472. Rare Disease Research Partners social objectives are to reinvest any surplus to support the mission of the MPS Society to transform the lives of patients through specialist knowledge, support, advocacy and research.
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