Rare Disease Research Partners support research and access to treatment for people living with rare conditions

Serving rare disease communities

Clinical Trial Support Services

We provide patients with access to worldwide clinical trials by offering personalised logistic support to patients and their families throughout their clinical trial journey

Managed Access Programmes

We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders

Evidence

We curate evidence to fully understand the benefits of treatments in populations and support market access for effective medicines

Research

We undertake novel research into the impact of rare conditions on patients and their families

Medical communications

We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications

Advice

We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases

The RDRP philosophy

Advice

We offer specialist expert advice of all aspects of rare diseases. So, whether you need plain-language communication, patient reported outcomes, constructive discussions with NICE, or anything in-between, we can help.