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We provide patients with access to worldwide clinical trials by offering personalised logistic support to patients and their families throughout their clinical trial journey
We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders
We curate evidence to fully understand the benefits of treatments in populations and support market access for effective medicines
We undertake novel research into the impact of rare conditions on patients and their families
We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications
We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases
We maintain a unique and specialised understanding of patients and their rare diseases in order to deliver an outstanding service, to our customers, that ultimately, benefits patients
We build strong relationships with partners working in the rare disease field in order to achieve the best for all patients
We believe that professional knowledge can only take us so far and we take the time to understand the individual needs of patients, their families and their disease
We are proud to be the first service of its kind to have grown from a patient organisation – the MPS Society UK. For over a decade, we have led the field in enabling rare disease patients to attend and remain on clinical trials, and access treatments
We offer specialist expert advice of all aspects of rare diseases. So, whether you need plain-language communication, patient reported outcomes, constructive discussions with NICE, or anything in-between, we can help.
Chief Executive Officer
Group CEO
Head of Group Finance
Executive Assistant
Head of Research and Medical Communications
Head of Clinical Trial Support Team
Senior Communications and Research Associate
Research and Communications Associate
Managed Access Agreement Coordinator
Clinical Trials Support Team Coordinator
Clinical Trial and Patient Access Officer
Clinical Trials Support Team Coordinator
Clinical Trials Support Team Coordinator
We are always happy to talk through your future projects and how we may be able to help. Please contact us for an informal discussion
Contact us
t. +44 (0) 345 260 1087
e. info@rd-rp.com
MPS House
Repton Place, White Lion Road
Amersham, Buckinghamshire, HP7 9LP
