A young boy with MPS with light brown hair, wearing glasses with dark frames, and a navy blue and gray striped sweater, has a thoughtful expression on his face.

Supporting research and access to treatment for people living with rare conditions

BOBI Awards 2025 Winner

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Find out more

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BOBI Awards 2025 Winner + Find out more +

Three women standing together at an awards ceremony, with a green and purple background.

We put patients at the centre of our business.

Delivering unique research insights, outstanding support for people taking part in clinical trials and access to new treatments. We help patients with reimbursement, and provide expert rare disease communications.

Close-up of two young men with MPS, one with short brown hair and the other with blond hair, both wearing white shirts, standing against a plain background.
A young girl with MPS, light blue eyes and long brown hair, smiling with slightly crooked teeth, in front of a plain background.

Our services

  • A laptop on a desk with a toy airplane on its keyboard, a clock, and a stack of books in the background.

    Clinical Trials Support

    We provide patients with access to worldwide clinical trials through personalised logistics support and reimbursement.

  • Two people are reviewing financial or business reports and charts on a table, using pens and pointing at data on colorful printed sheets.

    Research and Evidence

    We undertake novel research into the impact of rare conditions on patients and their families and curate evidence to fully understand the benefits of treatments.

  • A person in a white sweater is holding an open pamphlet titled 'Fabry Findings' on a wooden table, with several other flyers and brochures related to Fabry disease.

    Medical Communications

    We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications.

  • Two women sitting at a table, reviewing and taking notes on printed documents and notepads, wearing polka dot blouses.

    Managed Access Programmes

    We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders.

  • Meeting with people sitting at a conference table with laptops and notebooks.

    Advice

    We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases.

  • A red wooden figure of a person standing among several undecorated wooden figures on a dark surface, with a magnifying glass in the background.

    Recruitment

    We specialise in supporting recruitment for research projects within the rare disease landscape.


About us

Our company was founded in 2012 to boost research and improve access to care and treatment for MPS and wider rare disease communities. Starting with just two staff supporting patients taking part in clinical trials, we’ve grown and diversified to offer a comprehensive range of services for pharmaceutical and patient organisation clients

  • Several research papers, reports, and informational documents arranged on a wooden surface, including a cover page titled 'Vimizim treatment for Morquio A: The Managed Access Agreement.'

    Publications

    We undertake novel research into the impact of rare conditions on patients and their families and develop communications that raise awareness and understanding, from patient-friendly materials to scientific publications.

  • Three members of the Research and Medical Communications Team in lab coats and safety goggles visiting a laboratory.

    News

    Our work focuses on bringing to light the needs of people with rare and complex diseases and ensuring that they are able to engage with all forms of research that might enhance their lives.

  • Brochure or informational pamphlet for Rare Disease Research Partners featuring photos of children and supporting research for rare conditions.

    Brochure

    View our brochure to learn more about us and how we can support your work.

Testimonials

"As the sponsor study lead for two clinical trials, having RDRP perform the travel and reimbursement responsibilities for our subjects was an excellent decision. We have only received positive feedback from our sites and subjects about their experience with the RDRP team. Our subjects have expressed that they really appreciate the work that RDRP does for them, and we know that RDRP plays such an important role in our relationships with our participant population. Thank you RDRP!"

Senior Clinical Trial Manager, USA

Case Studies

Our experienced clinical trial support team are always on hand to deal with the difficult and challenging situations faced by clinical trial participants.

Read our case studies to learn more about how we manage these challenges.

Working together

We are always happy to talk through your future projects and how we may be able to help. Please contact us for an informal discussion.