Rare Disease Research Partners support research and access to treatment for people living with rare conditions

Serving rare disease communities

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Clinical Trial Support Services

We provide patients with access to worldwide clinical trials by offering personalised logistic support to patients and their families throughout their clinical trial journey

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Managed Access Programmes

We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders

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We curate evidence to fully understand the benefits of treatments in populations and support market access for effective medicines

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We undertake novel research into the impact of rare conditions on patients and their families

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Medical communications

We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications

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We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases

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RDRP Brochure

The RDRP philosophy

Patient focussed

We maintain a unique and specialised understanding of patients and their rare diseases in order to deliver an outstanding service, to our customers, that ultimately, benefits patients


We build strong relationships with partners working in the rare disease field in order to achieve the best for all patients


We believe that professional knowledge can only take us so far and we take the time to understand the individual needs of patients, their families and their disease


We are proud to be the first service of its kind to have grown from a patient organisation – the MPS Society UK. For over a decade, we have led the field in enabling rare disease patients to attend and remain on clinical trials, and access treatments

Meet our team

Tom Kenny

Chief Executive Officer

Bob Stevens

Group CEO

John Illankovan

Head of Group Finance

Toni Ellerton

Executive Assistant

Alex Morrison

Head of Research and Medical Communications

Bennie Marshall-Andrew

Head of Clinical Trial Support Team

Eva Raebel

Principal Research and Medical Communications Associate

Sam Wiseman

Senior Research Associate and Managed Access Lead

Ella Lineham

Medical Communications Associate

Pauline Grant

Clinical Trials Support Team Coordinator

Lianne Mott

Clinical Trials Support Team Coordinator

Jo Slade

Clinical Trials Support Team Coordinator

Harriet Clayton

Clinical Trials Support Team Coordinator

Madeline Pearson Dawson

Research Associate

Neera Gupta

Senior Finance Officer

Marnie Ross

Research Associate

Sandali Jayasinghe

Research Associate

Clara Morrison

Project Support Associate