Bob Stevens is Group Chief Executive Officer of the parent company, The MPS Society and Chair of Rare Disease Research Partners (RDRP).

Bob works on a global scale, promoting the benefits of collaboration between all key stakeholders, the importance of the patient voice and business development.

Before joining RDRP, Bob worked in both the non-profit and private sectors, mainly at board level, as well as managing a private property development portfolio.  

Having two sons with a rare disease means this is not simply a job for him, but a way of life.