Supporting research and access to treatment for people living with rare conditions

Serving rare disease communities

BOBI Awards Winner

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Find Out More

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BOBI Awards Winner + Find Out More +

We put patients at the centre of our business.

Delivering unique research insights, outstanding support for people taking part in clinical trials and access to new treatments. We help patients with reimbursement, and provide expert rare disease communications.

Our services

  • Clinical Trials Support

    We provide patients with access to worldwide clinical trials through personalised logistics support and reimbursement.

  • Research and Evidence

    We undertake novel research into the impact of rare conditions on patients and their families and curate evidence to fully understand the benefits of treatments.

  • Medical Communications

    We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications.

  • Managed Access Programmes

    We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders.

  • Advice

    We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases.

About us

Our company was founded in 2012 to boost research and improve access to care and treatment for MPS and wider rare disease communities. Starting with just two staff supporting patients taking part in clinical trials, we’ve grown and diversified to offer a comprehensive range of services for pharmaceutical and patient organisation clients

  • Publications

    We undertake novel research into the impact of rare conditions on patients and their families and develop communications that raise awareness and understanding, from patient-friendly materials to scientific publications.

  • News

    Our work focuses on bringing to light the needs of people with rare and complex diseases and ensuring that they are able to engage with all forms of research that might enhance their lives.

  • Brochure

    View our brochure to learn more about us and how we can support your work.

Case Studies

Our experienced clinical trial support team are always on hand to deal with the difficult and challenging situations faced by clinical trial participants.

Read our case studies to learn more about how we manage these challenges.

Working together

We are always happy to talk through your future projects and how we may be able to help. Please contact us for an informal discussion