Sandali Jayasinghe – Rare Disease Research Partners

Alex Morrison

Alexandra Morrison (Alex) is Head of Research and Medical Communications at Rare Disease Research Partners (RDRP). In this role, she generates evidence to support the development and reimbursement of new treatments in rare diseases, with a focus on the patient experience. Before joining RDRP, Alex worked in information, medical affairs and medical communications roles in

Bennie Marshall-Andrew

Benedicta Marshall-Andrew (Bennie) is the Head of the Clinical Trial Support Team at Rare Disease Research Partners (RDRP). Her role is to manage and provide support to the team, ensuring that they deliver the best possible service to RDRP’s clients and clinical trial participants. Bennie has worked for RDRP since 2015 and, during this time,

Bob Stevens

Bob Stevens is Group Chief Executive Officer of the parent company, The MPS Society and Chair of Rare Disease Research Partners (RDRP). Bob works on a global scale, promoting the benefits of collaboration between all key stakeholders, the importance of the patient voice and business development. Before joining RDRP, Bob worked in both the non-profit

Eva Raebel

Eva Raebel is Senior Communications and Research Associate at Rare Disease Research Partners (RDRP). Her role involves medical writing, communicating the company’s activities and research to a varied range of audiences and assisting with research studies. Before joining RDRP, Eva worked as a medical/scientific writer for a medical communications agency and a health behavioural change

Jo Slade

Joanna Slade (Jo) is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, Jo arranges travel and accommodation for patients attending clinical trials and the reimbursement of their travel expenses. Before joining RDRP, Jo spent 16 years working for the NHS, mainly in GP surgeries. Jo has a BA

John Illankovan

John Illankovan is Head of Group Finance at Rare Disease Research Partners (RDRP). In this role he is responsible for the financial management of the company, including internal and external financial reporting. Before joining RDRP, John spent over 25 years in financial management in the non-profit sector, working as Head of Finance for an international NGO.

Lianne Mott

Lianne Mott is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, Lianne is responsible for assisting patients and their families to participate in clinical trials. This involves sourcing suitable travel and accommodation options for study visits, reimbursing study related expenses and assisting with the relocation of families, often

Sam Wiseman

Samantha Wiseman (Sam) is Managed Access Agreement (MAA) Coordinator at Rare Disease Research Partners (RDRP). In this role, she mainly works on MAAs where she is in regular contact with participants collecting Quality of Life information. Before joining RDRP, Sam worked in data management and drug safety within Clinical Research roles. Sam has a BSc

Tom Kenny

Tom Kenny is Chief Executive Officer at Rare Disease Research Partners (RDRP). In this role, he oversees all aspects of the organisation. Before joining RDRP, Tom worked in a wide variety of roles in the public and private sector. Tom is dual qualified as a GP and Public Health Physician, has a MBA and a

Toni Ellerton

Toni Ellerton is Executive Assistant for Rare Disease Research Partners (RDRP). In this role, she manages the diaries of both Chief Executives, together with assisting with administration, travel and event organisation. Before joining RDRP, Toni was working within the IT and marketing industry and has acquired over 20 years’ experience as an Executive Assistant. Since

Pauline Grant

Pauline Grant is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, she provides worldwide logistical support and assistance to patients and their families to ensure that they are able to attend their study visits. Before joining RDRP, Pauline spent 12 years working as Deputy Manager of a Montessori Nursery

Harriet Clayton

Harriet Clayton is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, she organises travel and accommodation for patients and their families and arranges for reimbursement of expenses in order to make participating in the clinical trial as stress-free as possible. Before joining RDRP, Harriet studied for a BA

Madeline Pearson Dawson

Madeline Pearson Dawson is a Research Associate at Rare Disease Research Partners (RDRP). Her role involves supporting various research projects that benefit the rare disease community. Madeline is currently studying for her BSc in Psychology with Forensic Investigation and has joined RDRP as part of her third year placement. Before joining RDRP, Madeline worked in

Ella Lineham

Ella Lineham is a Medical Communications Associate at Rare Disease Research Partners (RDRP). Her role involves medical writing and communicating the company’s activities and research to a varied range of audiences. Before joining RDRP, Ella worked as a medical writer for a medical communications agency. Ella has a BSc in Biochemistry and a PhD in

Neera Gupta

Neera Gupta is a Senior Finance Office at Rare Disease Research Partners (RDRP). In this role, Neera is responsible for managing the Finance related day to day tasks for RDRP, including internal financial reporting. Before joining RDRP, Neera worked across various sectors including commercial insurance, food produce and entertainment, gaining 15 years’ experience within various

Marnie Ross

Marnie Ross is a Research Associate at Rare Disease Research Partners (RDRP). In this role, Marnie works on research projects that serve to better understand and communicate the needs of the rare disease community. Before joining RDRP, Marnie worked as a project coordinator for an organisation that specialises in business psychology. Marnie has a BSc

Clara Morrison

Clara Morrison is a Project Support Associate at Rare Disease Research Partners. In this role, Clara works on research projects conducted to improve the understanding of rare diseases and communicate the unmet needs of rare disease patients. Before joining Rare Disease Research Partners, Clara completed a BA in Business Management and Japanese Studies at Oxford