Pauline Grant – Rare Disease Research Partners

Alex Morrison

Alexandra Morrison (Alex) is Head of Research and Medical Communications at Rare Disease Research Partners (RDRP). In this role, she generates evidence to support the development and reimbursement of new treatments in rare diseases, with a focus on the patient experience. Before joining RDRP, Alex worked in information, medical affairs and medical communications roles in

Bennie Marshall-Andrew

Benedicta Marshall-Andrew (Bennie) is the Head of the Clinical Trial Support Team at Rare Disease Research Partners (RDRP). Her role is to manage and provide support to the team, ensuring that they deliver the best possible service to RDRP’s clients and clinical trial participants. Bennie has worked for RDRP for nearly five years and, during

Bob Stevens

Bob Stevens is Group Chief Executive Officer of the parent company, The MPS Society and Chair of Rare Disease Research Partners (RDRP). Bob works on a global scale, promoting the benefits of collaboration between all key stakeholders, the importance of the patient voice and business development. Before joining RDRP, Bob worked in both the non-profit

Chrissy Fortune

Christine Fortune (Chrissy) is Research and Communications Associate at Rare Disease Research Partners (RDRP). Her role includes supporting research projects and collecting patient reported outcomes for Managed Access Agreements. Before joining RDRP, Chrissy worked as a Personal Assistant. Chrissy finds the role especially rewarding when new research on rare diseases is published that RDRP has

Eva Raebel

Eva Raebel is Senior Communications and Research Associate at Rare Disease Research Partners (RDRP). Her role involves medical writing, communicating the company’s activities and research to a varied range of audiences and assisting with research studies. Before joining RDRP, Eva worked as a medical/scientific writer for a medical communications agency and a health behavioural change

Jo Slade

Joanna Slade (Jo) is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, Jo arranges travel and accommodation for patients attending clinical trials and the reimbursement of their travel expenses. Before joining RDRP, Jo spent 16 years working for the NHS, mainly in GP surgeries. Jo has a BA

John Illankovan

John Illankovan is Head of Group Finance at Rare Disease Research Partners (RDRP). In this role he is responsible for the financial management of the company, including internal and external financial reporting. Before joining RDRP, John spent over 25 years in financial management in the non-profit sector, working as Head of Finance for an international NGO.

Lianne Mott

Lianne Mott is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, Lianne organises travel, accommodation and reimbursement of expenses for patients and families attending clinical trials. She also arranges their relocation logistics to enable them to take part in worldwide clinical trials. Before joining RDRP, Lianne worked in

Sam Wiseman

Samantha Wiseman (Sam) is Managed Access Agreement (MAA) Coordinator at Rare Disease Research Partners (RDRP). In this role, she mainly works on MAAs where she is in regular contact with participants collecting Quality of Life information. Before joining RDRP, Sam worked in data management and drug safety within Clinical Research roles. Sam has a BSc

Tom Kenny

Tom Kenny is Chief Executive Officer at Rare Disease Research Partners (RDRP). In this role, he oversees all aspects of the organisation. Before joining RDRP, Tom worked in a wide variety of roles in the public and private sector. Tom is dual qualified as a GP and Public Health Physician, has a MBA and a

Toni Ellerton

Toni Ellerton is Executive Assistant for Rare Disease Research Partners (RDRP). In this role, she manages the diaries of both Chief Executives, together with assisting with administration, travel and event organisation. Before joining RDRP, Toni was working within the IT and marketing industry and has acquired over 20 years’ experience as an Executive Assistant. Since

Harriet Clayton

Harriet Clayton is a Clinical Trial Support Team Coordinator at Rare Disease Research Partners (RDRP). In this role, she organises travel and accommodation for patients and their families and arranges for reimbursement of expenses in order to make participating in the clinical trial as stress-free as possible. Before joining RDRP, Harriet studied for a BA

Medeah Yaqub

Medeah Yaqub is a Research Associate at Rare Disease Research Partners (RDRP). Her role involves supporting varied research projects and developing patient support materials for those with rare diseases. Before joining RDRP, Medeah worked as a Clinical Trial Coordinator running a portfolio of clinical trials within the NHS for cancer and gastrointestinal disorders to advance