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We undertake novel research into the impact of rare conditions on patients and their families

The design of effective research to provide real insight in rare diseases relies on a foundation of understanding the unique challenges faced by these patients and their caregivers. The study of these small populations is our speciality.

Bespoke research


With patient involvement and engagement at the cornerstone of development of novel therapies in rare disease, we can help you gain the insights needed from research to reimbursement.


Our team are experienced in the design and delivery of tailored research including diagnostic journeys, disease impact and the caregiver burden, patient reported outcomes and treatment experience.

Diverse approach

Using a range of flexible methodologies including patient surveys, interviews, focus groups and videography, we can take your study from initial concept to reporting, publication and the development of materials for company or patient use.

Working with patient communities

We have close partnerships with rare disease patient organisations in the UK and internationally. This, combined with the ties we hold with our founding charity, the MPS Society UK, allows us to work across borders while retaining our focus on rare and complex diseases.

Get in touch

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