Sandali Jayasinghe

Sandali Jayasinghe is a Research Associate at Rare Disease Research Partners. In this role, Sandali works on delivering a portfolio of research projects which aim to better understand the unmet needs and challenges faced within the rare disease community.

Before joining Rare Disease Research Partners, Sandali has recently completed a MSc in Clinical Drug Development at UCL. She also has BSc in Biomedical Sciences at University of Sussex.

Sandali feels grateful to be part of an amazing team who conducts research centred around patients’ needs and challenges, and she feels her work contributes to improving patients and families/caregivers’ quality of life.  

Marnie Ross

Marnie Ross is a Research Associate at Rare Disease Research Partners (RDRP). In this role, Marnie works on research projects that serve to better understand and communicate the needs of the rare disease community.

Before joining RDRP, Marnie worked as a project coordinator for an organisation that specialises in business psychology. Marnie has a BSc in Human and Social Sciences and has recently completed an MSc in Social Science Research Methods at Cardiff University in which she explored the impacts of bereavement on young adults.

Marnie is thrilled to be working within such a passionate team that puts patients at the centre of everything they do. She feels grateful to be supporting research that produces insights to make meaningful improvements in the lives of patients and their families.

Madeline Pearson Dawson

Madeline Pearson Dawson is a Research Associate at Rare Disease Research Partners (RDRP). Her role involves supporting various research projects that benefit the rare disease community.

Madeline is currently studying for her BSc in Psychology with Forensic Investigation and has joined RDRP as part of her third year placement. Before joining RDRP, Madeline worked in the customer service industry and also volunteered in various charity roles.

Madeline has close family members that have rare diseases and understands the importance of research in this area. This experience has inspired her to pursue a career in supporting rare disease communities through research.